Lived Experience Matters in Cancer Care and Research
Patient engagement plays a crucial role in improving cancer care and research, particularly through programs like the Patient and Family Engagement initiative.
This program involves patients and caregivers providing vital insights into the patient experience, aiming to enhance it.
The initiative has expanded to match patient advocates with researchers, helping design more authentic and participant-friendly clinical trials and studies.
- Some patients become advocates after positive experiences, such as early diagnosis and successful treatment.
- Others are motivated by negative experiences, like misdiagnoses.
For example, Brandelyn Bergstedt, director of Fred Hutch Cancer Center’s Patient Experience Program, became an advocate after a personal experience with a misdiagnosis during pregnancy.
Author's summary: Patient engagement enhances cancer care through lived experience.
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