Huntington’s Disease Clinical Research Congress 2025 – Day 1
This month, HDBuzz is attending the first Huntington’s Disease (HD) Clinical Research Congress in Nashville, Tennessee, organized by the Huntington Study Group (HSG) and CHDI Foundation.
The conference gathers hundreds of scientists, doctors, and industry representatives to discuss HD clinical research and care. Day 1 is the HD Community Research Day, focusing on topics relevant to families.
First Session: Demystifying Clinical Trials
The first session featured an interview-style panel with Arik Johnson, Chief Mission Officer at HDSA, discussing clinical trials with Dr. Alexander Dalrymple, a neurologist at UVA, Dr. Daniel Claassen, CEO of HSG, and Frances Saldana, an HD advocate and President Emeritus of HDCare.
The panel aimed to explain elements of a study, including protocols, endpoints, participation experience, and questions to ask.
Author's summary: Huntington's Disease congress discusses clinical research.
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